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Jardim das Borboletas (Garden of butterflies)
Children diagnosed with a rare disease called Epidermolysis Bullosa receive special treatment and care at the NGO "Jardim das Borboletas" in Caculé, Bahia. The disease that strikes the skin, is severe, non-contagious and incurable, leaving even sensitive wounds to water. The Fraternity without Frontiers (FWB) has embraced this initiative to help maintain this work full of love and hope.
Today, sponsorship will provide these children the chance of a better life. It will help buying expensive medicines and dressings.
A box of silicone dressing indicated for treatment, in size 20x50cm, which comes with four sheets costs in Brazil R$ 2250. In the United States, it is only $ 119. One child uses on average one box per day, totaling 30 boxes per month, about R$ 67,500. In 2018, the NGO Jardim das Borboletas spent more than R$ 948 thousand with 23 "butterflies" (Children welcomed by the project) between the months of March and December.
Apart from medicines, children need clothes and a better quality of life in the housing area.
Together, we want to provide for all these butterflies the best possible life, full of care, smiles, love and faith that better days are to come.
Some choices we make during our lives are not really choices, they are missions entrusted to us and we cannot turn our backs or close our eyes. Aline Teixeira da Silva knows this very well since the day she met the first child with Epidermolysis Bullosa (EB). Natalia, a four-year-old girl, suffered from the consequences of the disease unknown to Aline and the people of the backlands of Bahia. The disease is a deficiency in the connective tissue of the skin. "The child does not produce collagen and does not accept replacement, the marrow comes with this deficiency in the gene. So EB is a disease that leaves the skin loose, "explains Aline, who continues," beyond the skin being sensitive on the outside, people who suffer from EB have bruises from the inside making the whole digestive system not work properly. "
When she wanted to know the history of Natalia, she plunged deep into the call of her heart and began her journey to improve the life quality of these children. "When I started a fundraising campaign on her behalf, a lot of people started looking for help and that's when I founded the Butterfly Garden," she says.